CRISPR Gene Therapy Update: Seeing a Sunset
In May, patient Michael Kalberer wrote about why he joined a revolutionary clinical trial where he was only the second person in the world to ...
Archive for Patient Stories
Parosmia: Causing Foods to Taste Like “Garbage” and Affecting Everyday Life
COVID-19 has made college extremely challenging for students. The strict safety protocols and resulting isolation can lead to a dramatically altered college experience. For Maille ...
Running for Her Brother’s Cure
Twenty-one-year-old Kristen Miquel shares why she is running the 125th Boston Marathon for her younger brother Quentin who has a rare retinal disease. Kristen Miquel “If ...
Mending a Path Back to the Pool
After nearly a decade of enduring chronic ear infections from a perforated eardrum, Delia Binette almost had to give up the sport she loves most: ...
The Show Must Go On
Street performer Vivian Luo’s unexpected encounter with a rare eye infection began with a new pair of contact lenses. Her treatment at Mass Eye and ...
Hearing Devices Find a Friend
The Pediatric Hearing Loss Mentorship Program at Mass Eye and Ear uses peer mentorship to help children with hearing loss reduce the stigma that’s often ...
Hyperbaric Healing
Bob Cancalosi, a former General Electric executive who underwent treatment for a rare form of head and neck cancer, recently returned to Mass Eye and ...
Low Vision Patient’s Journey to Vision Rehabilitation Researcher
A graduate of the Employment Now Initiative, formerly Project SEARCH, a professional job and life skills program for visually impaired adults, shares her experience and ...
Experts Push for Legislation to Save More Babies’ Hearing
Cytomegalovirus (CMV) is the leading non-genetic cause of hearing loss in children. For June’s National CMV Awareness Month, Focus spoke with Michael Cohen, MD, and ...
Opportunity of a Lifetime: Why I Joined a CRISPR Gene Therapy Trial for Vision Loss
Michael J. Kalberer, LMSW, writes on his decision to join a revolutionary new trial studying an experimental gene therapy for safety and effectiveness at reversing ...
Unforeseen Airway Complications Increasing After Surviving COVID-19
A number of patients who received ventilator support while hospitalized with COVID-19 have developed issues in their airways and vocal cords that, if left untreated, ...
Finding Her Voice: A Look Inside the Transgender Voice and Communication Modification Service
The Transgender Voice and Communication Modification service at Mass Eye and Ear offers voice therapy to those who wish to explore and practice a voice ...
