Archive for Patient Stories
Maryjane Behforouz, of Indiana, spent years trying to ignore clicking sounds in her head. Then one day she found Dr. Tina Stankovic, an ear surgeon at Mass. Eye and Ear, who listened very carefully to her story. All diagnosed her with sensorineural hearing loss, or a loss of sensory cells in the ear. Unfortunately, there was little they could do to bring Maryjane's hearing back.
Jack was born with an eye condition known as retinitis pigmentosa associated with RPE65 gene mutations. On March 20, 2018, he was treated with a newly FDA-approved gene therapy drug known as Luxturna — and the results are life-changing.
Diagnosed with a rare form of glaucoma at age 15, Alex LeClair reflects on her journey with the sight-stealing condition.